Patient and Public Involvement (PPI)

About

Meet the members the Patient and Public Involvement (PPI) team. Each has been touched by cancer in their own way, and each chooses how they want to contribute, whether by joining meetings, offering advice, or helping to shape what we publish. Their experiences guide the decisions we make, and 4D PICTURE is better for their involvement.

PPI team

Ad den Besten

PPI Board Member

14 years ago, I was diagnosed with prostate cancer. After surgery and hormone treatment, I’m happy to say that things are going well, and that’s why I’m eager to be involved as a patient representative in the 4D picture project.

Lenneke Noorlander

PPI Board Member

In 2018, I was diagnosed with breast cancer. This experience inspired me to become involved in patient advocacy and to give something back to the hospital that supported me throughout my treatment. I am a member of the Advisory Board of the Erasmus MC Cancer Institute and of the PPI Board, where I work to ensure that patients’ experiences help improve cancer care and research. I am pleased to contribute to the 4D Picture project as a patient representative.

David Uttley

PPI Board Member

I’m David Uttley, a Stage IV melanoma patient, survivor and passionate patient advocate. Since my first diagnosis in 2013, I’ve dedicated myself to raising awareness, supporting others and championing the patient voice in cancer research. Through my Muttley Melanoma campaign, I share my experiences to help improve understanding, treatment and patient care. I’m proud to contribute my lived experience to the 4D PICTURE Project Consortium, helping ensure patients remain at the heart of shared decision-making. Link to my website.

Ellen Verschuur

PPI Board Member

Since 2000, the year I was diagnosed with breast cancer, I am actively involved in patient advocacy. First to advocate for access to the best practice treatment but in the course of my involvement my advocacy focus has shifted to patient partnership in cancer research. The last years I have been involved in a number of research projects in the role of co creator and co author.