Leiden University Medical Center


Our research team is part of the Dept of Biomedical Data Sciences at LUMC, conducting leading research and delivering high-quality education

A section of the department, the Advanced Data Management (ADM), is a knowledge center in the area of research data management and data stewardship. ADM offers support on all aspects of data management in clinical research and contributes to new developments in this area. FAIR data, Good Research Practice (GRP) and safe processing of personal data are important principles in this process.



Frank Doornkamp

PhD Student

I am a PhD student at the Biomedical Datascience department of Leiden University Medical Center. My primary role in the project will be to evaluate the incremental value of novel markers in decision-making for women with breast cancer.

Ellen Kapiteijn

Senior researcher/medical oncologist/associate professor

I am a medical oncologist treating mainly melanoma patients. My research focuses on real-life data, TIL-therapy and new treatments in uveal melanoma.

Marleen Kunneman

Assistant Professor

I am a clinical linguist and decision scientist with an interest in patient-clinician interaction and collaboration, and the extent to which care plans fit in people’s lives. My role in the project will be to evaluate the use of MetroMapping in clinical practice.

Ewout Steyerberg

Professor & Chair of department

I am a methodological researcher primarily interested in prediction research. I develop and apply advanced regression analysis and related techniques. My methodological areas of interest include biostatistics, cost-effectiveness, decision analysis.

Anne Stiggelbout

Professor of Medical Decision Making

I am a methodological researcher, interested in the role of patient preferences in decision making, shared decision making, and value-based healthcare. I am Co-PI of 4D-picture, and PI of the Policy work package. I am also the lead of the evaluation of Metro Mapping in the NL, ES and DK.

Suzan Verberne

Associate professor

I am an associate professor at the Leiden Institute of Advanced Computer Science. My main interest is interactive information access for specific domains, of which the health domain is a prominent one. In the project I will supervise the development of text mining methods for patient experiences.

Tamara Wit

PhD Student

I am a PhD student with an interest in patient-clinician communication. My primary role in the project will be to evaluate the use of Metro Mapping in decision-making for breast cancer, prostate cancer and melanoma patients.